Time Representation in Fox DEN
Temporal Variables in Fox DEN
CSV (comma separated value) files downloaded
from Fox DEN contain complementary columns that provide the ages of Fox Insight
participants along with information that can be used to determine when events
occurred over time. Event dates have been explicitly excluded to protect patient
confidentiality.
| fox_insight_id | age | days_elapsed | days_acquired | schedule_of_activities | MoveWho | MoveSpeech |
| FOX_AAAAAA | 83.1 | 29889 | 0 | 3 | 1 | 1 |
| FOX_BBBBBB | 64.3 | 23061 | 2 | 3 | 1 | 2 |
| FOX_BBBBBB | 64.7 | 23212 | 0 | 8 | 1 | 4 |
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age
The age of the Fox Insight participant when the event
occurred. Ages are rounded to one decimal place for patient confidentiality.
days_elapsed
The number of days that have elapsed since "Day 0" — a reference
date unique to each Fox Insight participant that is defined a few months after
the participant's birth date. Use this column to determine the number of days
between events.
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Note: Starting with the February 2022 data cut,
the days_elapsed variable in the “Registration” survey was changed
to reflect the time from Day 0 to the day each participant registered for Fox
Insight. This provides a chronological starting point for the days_elapsed
variables in other surveys which are defined using the last day each participant
responded to the survey.
days_acquired
The number of days the Fox Insight participant took to
complete a survey (often participants were not required to finish surveys during
one visit). When this column is present, each CSV row contains information from
the same acquisition period.
schedule_of_activities
The number of 30 day periods after the participant registered with Fox Insight.
This number aligns with the Fox Insight
Schedule of Activities.
Survey Responses (Through )
The graphic representation below depicts how
often participants answered each survey (logarithmic scale). Many surveys were
administered at different frequencies over different time periods; see details below
for more information.
Survey Version Details
Prior to September 5th 2019, participants had
90 days to complete study visit questionnaires. This created the potential
for an extremely short buffer period between subsequent study visits
(e.g., a participant could complete a survey on day 89, and then complete
the survey again on day 91). This window has been shortened to 30 days,
allowing for a 60-day buffer period between study visits.
Not all participants took the same surveys with the same cadences. In the example
illustration below, version 1 of the survey was administered 3 and 12 months after
registration, but version 2 was administered 6 and 15 months afterwards. This
resulted in cumulative survey responses different from the cadences of either
version. The Fox Insight Schedule of
Activities lists the current cadence of each survey.
